Monday, 25 June 2012

Running on empty

Last night we had a bit of a scare with Jack as we were walking to get some food at 7pm. Basically, in cycling terms, Jack 'bonked' which means his blood suger levels got too low.
As a sufferer of Huntingtons his jerk like movements cause him to use far more energy than most. If you factor in a 50 mile a day bike ride, having the correct diet becomes even more important. Unfortunately, on day one of the ride he had refused the isotonic supplements we would prepare daily, claiming he only ever drank water when cycling and needed nothing else fancy to drink. (Unfortunately, some stubborness is part of the disease).
Suffering from Huntingtons exagerates the problem even more  so and Jack became extremely agitated, even when he was eating his food, to a point where it became quite distressing for both him and those around him. Suddenly, the full responsibility of looking after Jack had hit home. Isolated in a motel room, miles from home - it was a scary moment.
It took time for Jack to settle as he was getting reallly annoyed that i kept trying to fill his plate as he struggled with his jerk like movements to eat. Given the amount of exercise he had done, four hours without food is not enough and his disease is such that he cannot just get his wallet out and pop down the shops to buy food. Indeed, i have been dealing with the money side of things on this trip because of his disease.
He had an early night last night and is fine this morning and has eaten a good breakfast and is raring to go. However, a reminder to everyone that what he is achieving this week is truly remarkable - i have nothing but admiration for my friend.

2 comments:

  1. this is the first time I've noticed this comment box, so no idea if you'll get this or not but here goes . . .
    well done to all so far, you've made it sound quite appealing, which for a non-cyclist is something. I particularly liked the bit about Jack's 'well placed stool' (Sunday 24th June).
    looking forward to reading the next instalment
    jb

    ReplyDelete
  2. Hi John, everything going to pan and thanks for your best wishes. I hope work is ok.

    ReplyDelete